Privacy Policy


 *Updated on 03 February 2021

The Global Schistosomiasis Alliance (“We, us, our”) is committed to protecting and respecting your privacy. This Privacy Policy applies to information we collect about individuals who interact with our organisation. It explains what personal information we collect and how we use it.   

If you have any comments or questions about this notice, anouk [dot] gouvras [at] eliminateschisto [dot] org (feel free to contact us)

This policy (together with our Terms of Use and any other policy referred to in this document) sets out the basis on which any personal data we collect from you, or that you provide to us, will be processed by us. Please read the following carefully to understand our views and practices regarding your personal data and how we will treat it. By visiting you are accepting and consenting to the practices described in this policy. 

For the purpose of the all applicable data protection legislations (including the Data Protection Act 1998 and the General Data Protection Regulation), the data controller is Global Schistosomiasis Alliance. 

No personal data about visitors to this site, collected by us, is sold or released to anyone without prior active informed consent from you.  In other words, no information is released to a third party unless you have given permission first. 



 The following table explains the types of data we may collect and the legal basis, under current data protection legislation, on which this data is processed.  

Purpose Data (key elements) Basis
Enquiring about our organisation and its work  Name, email, message  Legitimate interests - it is necessary for us to read and store your message so that we can respond in the way that you would expect. 
Subscribing to email updates about our work  Name, email  Consent - you have given your active consent.  
Signing up as a member  Name, email, area of work, career stage, country, organisation  Contract – by signing up to a membership, you have entered into a contractual relationship with us as set out in our membership terms and conditions. 
Website functionality Website activity collected through cookies 

Legitimate interests - it is necessary for us to store a small amount of information, usually through cookies, to deliver functionality that you would expect, such as remembering the contents of your order before you have fully completed the process. 



Our website uses cookies to distinguish you from other users of our website. This helps us to provide you with a good experience when you browse our website and also allows us to improve our site. By continuing to browse the site, you are agreeing to our use of cookies.  

A cookie is a small file of letters and numbers that we store on your browser or the hard drive of your computer if you agree. Cookies contain information that is transferred to your computer’s hard drive.  

Where cookies are used to collect personal data, we list these purposes in the above table, along with other personal data that we collect. However, we also use some cookies that do not collect personal information but that do help us collect anonymous information about how people use our website. We use Google Analytics for this purpose.  Google Analytics generates statistical and other information about website usage by means of cookies, which are stored on users' computers. The information collected by Google Analytics about usage of our website is not personally identifiable. The data is collected anonymously, stored by Google and used by us to create reports about website usage. Google's privacy policy is available at 



We will only use your data in a manner that is appropriate considering the basis on which that data was collected. 

For example, we may use your personal information to reply to enquiries you send to us; or where you have specifically agreed to this, send you marketing communications by email relating to our work which we think may be of interest to you (including bulletin, research updates and announcements).   



We may disclose your personal information to third parties only if: 

  • You have provided your explicit consent for us to pass data to a named third party;   
  • We are using a third party purely for the purposes of processing data on our behalf and we have in place a data processing agreement with that third party that fulfils our legal obligations in relation to the use of third party data processors;
  • We are under a duty to disclose or share your personal data in order to comply with any legal obligation,
  • In order to enforce or apply the terms of any other agreements;
  • To protect the rights, property, or safety of Global Schistosomiasis Alliance, our customers, or others.  

The data that we collect from you may be transferred to, and stored at, a destination outside the European Economic Area (“EEA”). It may also be processed by staff operating outside the EEA who work for us, or for one of our suppliers. Such staff may be engaged in, among other things, the fulfilment of your order, the processing of your payment details and the provision of support services. By submitting your personal data, you agree to this transfer, storing or processing. We will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this privacy policy. We will only pass data to third parties outside of the EU where appropriate safeguards are in place as defined by Article 46 of the General Data Protection Regulation. 

All information you provide to us is stored on our secure servers.  We will do our best to protect your personal data, we cannot however guarantee the security of your data transmitted to our site. Any transmission is at your own risk. Once we have received your information, we will use strict procedures and security features to try to prevent unauthorised access. 



You have a range of rights over your data, which include the following:  

  • Where data processing is based on consent, you may revoke this consent at any time and we will make it as easy as possible for you to do this (for example by putting ‘unsubscribe’ links at the bottom of all our marketing emails);   
  • You have the right to ask for rectification and/or deletion of your information;
  • You have the right of access to your information;
  • You have the right to lodge a complaint with the Information Commissioner if you feel your rights have been infringed.   

A full summary of your legal rights over your data can be found on the Information Commissioner’s website here: 



Any changes we may make to our privacy policy in the future will be posted on this page and, where appropriate, notified to you by e-mail. Please check back frequently to see any updates or changes to our privacy policy.